This boy and I have been making the rounds.
He is tired of them all and I have to say so am I.
He has more doctors appointments than all of the kids in our family combined.
He goes to appointment after appointment.
We talk about him as if he wasn’t in the room. We ask questions trying to figure out what is going on. We are getting closer and closer to help.
Something cool happened the other day. I was cleaning out some boxes and found a bunch of his hospital paperwork. This is a blessing and completely amazing. Yes! We have confirmation of what has just been our word. You may never know or understand how important this is.
Life can be rough this boy.
He isn’t always able to process well. He makes mistakes. He struggles. Most interactions are difficult.
He sits in doctors offices. Some of the words that are now in his vocabulary: occupational therapy, neuropsychological evaluation, neurofeedback, therapy, developmental pediatrician, med management, psychiatrist, autism testing, IEP, 504 and more.
He listens as adults evaluate his behavior, his medicines, his academic performance, his sleep, his cognitive level, his lack of emotion and more. Very rarely does anyone look at him or acknowledge his opinion.
If you were to ask him what he thinks is going on he would tell you ,” I know I am different. I don’t know what is wrong with me. Why can’t I be like everyone else?”
He knows. He is smart.
Something most people don’t know is he can honestly be the sweetest, most helpful boy. He has an amazing smile and it is so fun to see him laugh and engage with the family.
I love this boy. I love all that he brings to my life. Being a parent of an undiagnosed special needs child isn’t easy. Especially because he looks average. He doesn’t have any glaringly obvious features of a special needs child. This boy is special. He is special because he is mine.
He isn’t easy but he is so worth all of my time and effort.
I sure love my boy.
I sure love my boy